Psychoneuroimmunology - When the Body Says No

Psychoneuroimmunology??? What the heck is that?  It is the study of the interaction between psychological processes and the nervous and immune systems of the human body.

Well, I just finished reading a book written by Gabor Mate titled, When the Body Says No: Exploring the Stress-Disease Connection, and it has confirmed my initial belief that this yucky RA autoimmune disease is emotionally related, not just physi

cal.

He uses many stories and examples from people who have the same illnesses and found that a few common factors existed in all which are:

1. Childhood trauma / loss
2. Inability to say no / lack of boundaries
3. Repression of emotions especially anger
4. Serving everyone else but themselves
5. Lack of self worth and self awareness

6. Driven (to compensate for #5)

He also mentions that hidden stresses from our early programming, becomes a pattern so entrenched in our being that it feels normal. In other words, our minds don't even realize it; but our bodies are (well at least mine is) is crying out "no". 

Recently I've also explored professional counselling to seek healing from inside out. After a few sessions, I came to realize that I am always on guard as if I am perpetually in danger. Though my mind knows I'm not; my body still thinks I am and reacts. Hence anxiety level rises, my immune system is wonky and attacking, (except it's attacking the wrong thing, myself), and finally I end up judging myself. 

Both Gabor and my counsellor mentioned that self love and acceptance is crucial in the healing process.

One example in the book healed through daily practice of emotional self-inventory and of self-love that, little by little, "unfroze" each part of her body.  He dedicates a chapter on healing using 7 A's as acronyms for

1. Acceptance - Embrace our individuality and uniqueness, both strengths and weaknesses

2. Awareness - Be aware of our emotions, our bodies, our stressors

3. Anger - Allow anger to motivate healthy action

4. Autonomy - Develop our internal centre of control

5. Attachment - To allow and enjoy genuine emotional support from others

6. Assertion - To just BE, irrespective of action

7. Affirmation - To affirm our creative expressions and our connectedness (mine being today, writing)

Am I flaring now? Yes, my wrists are today, the question is Why? What is my body saying no to?
I guess it's something I'm going to have to ask, pay attention and listen for. 

No to self judgement and expectations
No to expectations from others
No to verbal abuse

No to hostile environments

No to demands from work
No to needy people

No No No!!!

6 - Month Baby Lucas Update

So Lucas is actually 7 months now, but I previously wrote that I will give an update at 6 months, so here are his stats first:

STATS

Weight:                   17.3 pounds (50% percentile)

Height:                    70cm (75% percentile)
Head:                      I forgot but it was (50% percentile)

OVERALL HEALTH

Besides  a slight fever after his 3 month's vaccines, Lucas has not been sick at all. (As a mom I worry and I wonder whether it's because his immune system is on over drive like mine. Gosh, here I am worrying if he is sick and worrying if he's not sick). He does have eczema though behind his knees, elbows and ears and we use California Babies Calendula cream - Always sold out at Target! (US only)
http://www.californiababy.com/calendula-cream-2-oz.html
Hydrocortizone seems to work too, but we prefer to use something more natural.

FEEDS

Lucas started organic rice cereal at 4 months. Then at 6 months we introduced congee -
He LOVES the chicken congee that his grandmother makes. He doesn't like oatmeal, or any of the jar baby foods, except for the fruits and vegtables. Likely schedule:

7:00 am - breast milk
9:00 am - 1/2 bowl (chinese rice bowl) congee mixed with rice cereal PLUS
1/4 bowl wheat, strawberry yogurt cereal
10:00 am - breast milk
12:00 am - 1/4 to 1/2 bowl of congee
2:00 pm - breast milk
4:00 pm - cracker / fruit snack / offer milk
6:00 pm - 1/2 bowl of congee / offer milk
9:00 pm  - breastmilk

I'm currently making congee every 2 days for this little guy. Basically boil rice, with organic vegtables (carrots / zuccini / spinich / yam) and chicken. Then grind up the larger chunks in magic bullet, mix and store in fridge.

SLEEP

Lucas sleeps in his crib, but wakes up throughout the night.Usually once at midnight, then 2am, then 5am and 7am. I nurse him back to sleep and sleep myself each time.


MILESTONES & PERSONALITY

Lucas likes to growl and can get agressive when he is determined or fixated on an item within his reach. Perhaps this is why he has pushed himself up to sitting, rolled over to his target object, and tries to crawl ( I call it the swimming position).

However as I'm typing today, Lucas is actually 7 months and he has started crawling now to his destination!!!

He is a happy baby most of the time :) Very easily amused with peekaboo, sing song noises and/or funny faces. For an immediate giggle, bring him to look at himself in a mirror:) On the bus, he tends to scrunch his  eyebrows at people with a look of "who the heck are you?" and if he is tired on top of that, he just stares - LOL Some people call him a deep thinker.   Most of the time, when people smile at him, he flashes a smile right back. From my observation, Lucas is extroverted - He loves being around people and other children and will kick his legs in excitement and giggle.

MOST MEMORABLE

We celebrated our first father's day this year! I use to be sad on father's day as I reflect on my fatherless years. 

However, this year, I am truly blessed to have celebrated father's day with Maurice and Lucas! Plus I connected with my biological father in HK. From this year forward I will look forward to father's day:)


Enbrel & Breastfeeding
I'm currently injecting Enbrel twice a month since I've cut out the list of allergic foods from my diet.
Cutting out certain foods seem to be helping (excpet I had a beer a couple days ago without realizing that it is made from wheat) and my wrist swelled up till now.  Any how, Enbrel does not seem to have compromised Lucas's immune system and he seems to be doing well. The rheumatologist had said that Enbrel is a protein anyways and if ingested will just breakdown and pass through his body without affecting him.

Well thanks for reading! I'll provide an update soon re: Naturalpath and healing of RA

Finding Cure for RA with Natural Remedies (cont.) - Natural Path Update

Hello!!! So it's been a couple months since I've provided an update pertaining to the healing of this Rheumatoid Arthristis auto immune yucky illness.

Here's a summary of events.
2005 - Diagnosed with RA
           I've tried methotrexate, plaquinil, sulphasalazine, and now on Enbrel (1 injection every 2 weeks)
2007 - Trip to China for 4 months and RA went into remission
2010 - Pregnant while on Enbrel


Here we are in year 2011 and the birth of my baby has given me a reason beyond myself to be healthy and seek a cure for this disease.

In march I tried Acupunture to treat the inflamed joints and it was useless; rather it made my joints worse!
The chinese medical practitioner aslo recommended me herbal medication; but did not email me the ingredients as I asked, so I gave up on him.

In April, I booked my self in to see a Natural Path. - He booked me in for a blood test and below are my results, which I just got today. Surprise suprise! I'm allergic to my favorite foods - so weird.
Basically, the numbers to the left indicate the number of antibodies my body produces to fight the particular food allergen - for example EGGS

My body has developed 2472 antibodies to fight EGGS. The normal level should be only 111.
Taking a look at the number of  foods that are in the avoid category, no wonder why my immune system is on overdrive! (by the way this is only page 1, the entire report is 4 pages)

 .

Additional Supplements presribed by Natural Path

I have never popped so many pills in my life; but for the sake of healing I will.  So here goes:

1. Rehmannia & Scrophularia Herbal Supplement (2 pills, 3 times /day)
2. Curcumin SAP antioxidant (1 pill, 3 times / day)
3. Recovery SAP probiotics (1 pill / day)
4. EGCG SAP ultra antioxidant (1pill, 3 times / day)
5. Omega - D3 Liquid (1 tsp, 2 times / day)

In addtion, I am continuing with Enbrel injection twice a month.

The Natural Path doctor reassured me that the supplements will not harm my baby; rather be very good for him too.

Next Action: continue with Enbrel twice / week, supplements per above for 1 month, try my best to stick to this new diet

6 Month Baby Lucas Schedule

Lucas is almost 6 months old and I feel like I still don't have a routine / schedule.
So I tried to document my last 2 days to find a similar rythem- here goes:

Tuesday - Schedule (Good Day)
6:45 am wake up, change diaper.
6;50 am play
7:05 am feed
7:20 am lay in bed w mommy
7:30 am sit in saucer
7:45 am nap
9:40 amwake up sit saucer
10:00 am eat cereal
10:40 am play
11:15 am feed
11:30 am do laundry w mommy
12:00 pm play mat
12:15 pm feed
12:22 pm nap
12:45 pm move laundry to dryer w mom
1:20 pm diaper change
1:20 pm walk to bank
2:50 pm feed
3:00 pm walk back
3:15 pm nap (mommy do chores)
4:35 pm wake up, change diaper
4:40 pm feed
4:55 pm watch daddy play video
5:15 pm eat cereal little bit
6:00 pm swimming (mommy can work out)
6:3o pm shower change diaper
7:20 pm feed
7:30 pm change poo poo diaper n clothes
7:40 pm quick shower
7:45 pm feed
8:00 pm nap
10:00 pm feed bit, change diaper
10:20 pm saucer
10:30 pm feed bit and sleep
2:00 am feed
4:00 am feed
5:00 am feed

Wednesday - Schedule Tiring and Frustrating Day

7:25 am wake up, change diaper
7:35 am feed a bit
7:40 am saucer
8:00 am feed then nap
10:00 am wake up and feed
10:10 am Play
10:30 am ate bit cereal
11:00 am play in crib
11:20 am feed
11:30 am sit in saucer getting fussy
12:00 pm lay with mommy in bed try to sleep (no)
12:10 pm play mat (fussy)
12:20 pm crib (fussy)
12:30 pm nap
1:00 pm wake up, feed
1:15 pm saucer
1:30 pm playmat
2:00 pm short walk to get mommy coffee
3:00 pm saucer
3;05 pm short feed
3:10 pm play on mommy's lap
3:20 pm play on futon mat, video rollover n giggles
3:40 pm feed
3:45 pm nap while mommy folds laundry
4:15 pm wake up help mommy archive clothes that are too small - (fussy)
5:00 pm refuse cereal
5:15 pm in crib (fussy)
5:25 play w daddy!!! - mommy goes for 1/2 walk
6:30 pm feed
6:40 pm nap
7:00 pm wakup, watch mommy cook
7:45 pm refuse breast, too bottle
8:00 pm in crib fussy
8:15 pm took rest of bottle
8:30 pm nap
9:30 pm wake up n cuddle
10:00 pm sleep

I'm posting this at 10:30 pm now, so will update to see if there is a pattern with night wakings and feeding times.

Phew I feel pooped and I want 4 kids. Wow!

Finding Cure for RA with Natural Remedies while Caring for a Baby

So I ended up my last blog,with:
Next action: continue taking Enbrel, cut out gluten, cut out milk, take multi-vitamins.

Well first off, my "Special Authority" from the government expired, so my meds cost $1,500 for 4 injections. (1 months supply) and as a self employed new mom, I don't get any maternity benefits, nor do I take a salary from my company as I need to pay the workers and partner there first! - How on earth am I to come up with $1,500 each month for meds? It's ridiculous. I try to budget time per day to "work", but really it's not possible with the demands of a baby and sore limbs. I'm starting to realize how limited I am and that I can't be the super mom, I'd like to be.

However, on a brighter note, it is a miracle, that I have not flared badly yet. - Perhaps its cutting out the gluten and milk, or perhaps it's God's hands upon my bones, or perhaps its both. - Either way, I am truly grateful that I am not in too much pain, right now.  1 shot of Enbrel usually helps for 4-6 days before I flare again, and need another shot.  It's like clock work. It's really a miracle that I am not actively flaring badly right now (just my hands) with out Enbrel for a whole week.

As for Baby Lucas :) - He is a bundle of joy from God. - I still love being a mom and can find alternative ways / positions to feed him without directly using my hands. - Being forced off Enbrel might be a good thing, as the med passes into my breast milk to him. Though the doctor said it gets broken down in his tummy and should not affect his immune system, do they really know the truth? - More about Lucas when we visit his doctor at 4 months.
(He's 3 months now)

Finally, lets not forget my husband. He would hate for me to blog about him LOL, but I just want to say that I am very grateful for his love and care.


For those reading with RA, I found some excellent info/resources from Dr. Mercola's site  http://articles.mercola.com/videos.aspx -


Next actions: continue with no gluten and dairy diet, take multi-vitamins and pray! - Enbrel??!! Also, continue with weekly physiotherapy and explore the possibility of a naturalpath.  

Natural Remedies or Enbrel ? - Is there a cure for Rheumatoid Arthritis?

Well I ended off the last post by trying to cut gluten out of my diet to see if it will help with the inflammations and that I would stay clear of Enbrel, since I read of a number of lawsuits, suing Enbrel for causing cancer.

The truth is, I couldn't last 2 days without giving myself another shot. By day 2, places that haven't hurt since 2005 started to flare, like my collar bone and shoulders, in addition to my usual wrists and feet, making it hard to lift myself out of bed.

I couldn't bare the flare ups to see if cutting out gluten would work. Also, since I have a chubby 3 month old baby, I rather be able to pick him up and feed him, than be actively flaring up and bed ridden while testing natural remedies.


Though Cutting Out Gluten does make sense. The year I was diagnosed with RA, I remember being very unhealthy, living off pretzels and coffee while attending full-time school and working nights. High stress, unhealthy diet with excessive gluten, and genetics (my aunt has RA), are probably all common factors contributing to this auto immune disease.


Cutting Out Dairy?
Has any one watched "The Corporations" documentary? It is well worth watching.
From the video, I'm considering cutting out dairy as well since milk production companies inject cows with hormones to produce more milk. Many cows then develop infections (milk ducts get blocked) and hence are also injected with antibiotics. When milking cows, the puss from the infection can get into our milk, along with the hormones and antibiotics. YUCK! The US started to do this in 2002. I'm a type to have cereal with milk for breakfast everyday! I was diagnosed with an auto immune disease in 2005. Perhaps there is a link,  because... get this....  my RA went into remission when I was in China for 4 months  !! Weird. - The milk there tasted very different.

If you are a mom, please check this out: Check out: http://www.babycenter.com/0_bovine-growth-hormone-and-milk-what-you-need-to-know_64389.bc


Next action: continue taking Enbrel, cut out gluten, cut out milk, take multi-vitamins.


My next refill of Enbrel, may not be approved by the government, which means I am responsible for $1,500 which I do not have! So, I will have no shots. So I will update you soon.
:)

Jo

Enbrel Nightmare?

I saw a commercial for the first time about Enbrel.  At first, I was actually excited to see a commercial for the drug I was using; but that quickly faded when near the end a soft spoken lady calmly lists all the possible side effects... cancer..   What? Cancer? Really?

So I went home and googled Enbrel and Cancer to see what came up. Well I found this link:
 http://www.aboutlawsuits.com/enbrel-120/   comments from 2008 - 2011 of people who have lost a loved one while taking Enbrel.  What are the chances?

Its quite the dilemma. If i don't give my self my weekly Enbrel injections, I flare! My dose was due today and I skipped it. I could already feel soreness throughout my wrists, fingers, shoulder and feet.
Time to talk to my Rheumatologists and do some serious praying.

In the meantime, I will try cutting out gluten as I read that this helped someone else with RA.

Keep you posted and please pray for me.

Xoxo,
Jo